Lisa Moreno - Dickinson
THE WARRIOR QUEEN vs CAID
BOLD! BEAUTIFUL and TALENTED! A MOTHER WITH A GOLDEN HEART! HERE AT EPN, WE CALL LISA MORENO-DICKENSON A SUPER WOMAN! A WARRIOR QUEEN AGAINST CAID? We recently asked Lisa to define herself and share her amazing story with us. WOW! WHAT AN INSPIRATION!!!!!
EPN: How do you define yourself?
Lisa: How do I define myself, I am a DAME (Determined Ambitious Mom Endlessly looking for a CURE 4 CAID), Mom, a Daughter, Sister, Soul Sister, Advocate, President and Founder for StopCAIDnow.... I am REAL! My name is Lisa, I am a 42 yr old mom of two amazing souls. I studied Criminal Justice and double majored in Psychology and nutrition. I have always been TRUE 2 myself and walked through life appreciating and knowing each day is a blessed one. My first "job" was a huger at the Special Olympics and from there on my love to help children started. I worked at homeless shelters, was a kindergarten , 1st grade teacher, photographer and received awards for photos I took of faces of veterans and the homeless (which I felt the faces told their stories without words), Was the first to head the laugh mobile at the NIH in which I dressed up as a clown and care for children and adults with cancer and HIV/AIDS ,Counselor for juvenile Jail with focus on MS13, Studied at the Richmond University in London to understand the difference in the Laws oversea vs USA, continued education at Arizona State University. My two boys have rare diseases .
"I was going to go back to working at the police department and get into forensic Psychology, I had application in hand and at that moment looked at Brody (my now 4 yr old). We finally had a diagnosis after 19 horrific months. However, we did not have a prognosis(meaning we don't and still don't know how long we have him) and are giving him an adult dose of injections daily. So knowing that I had to do more for him, I tore up the application and sat at my laptop and created StopCAIDnow. For the first 19 months of Brody's life( who is now 2years old), we did not have a diagnosis for him. I listened to the song" I can only imagine" by Mercy Me, as I rocked him everyday with three hours of sleep bc his pains were so bad. I became Brody's security blanket and treatment and sometimes that was not enough. I knew with my WILL to help Brody, that I could help all children suffering from CAID so I started StopCAIDnow.org
. and coined the term CAID to stand for Childhood AutoInflammatory Diseases. If I could find the mechanism to turn off the inflammation process in A typical Blau Disease, then I was going to do it for all Childhood AutoInflammatory Diseases.
My oldest(now 8) has a different disease, yet the treatment I just announced will also help his condition as well.
EPN: We understand that in 2yrs you have established:
stopCAIDnow and StopCAIDnowInternational, tell us about your organizations and the lovely work that you are doing to fight this disease:
Lisa: CAID is not one disease, we cover over 30 from A-typical Blau Syndrome, CRMO, Wegeners, Behcets..StopCAIDnow is the first one to cover all AutoInflammatory Diseases Our mission is to-Educate, Provide Awareness, and Fund Researchers/Projects who are committed to finding a CURE. We are equally focused on the self esteem of the children with CAID and helping the families by giving them "TRUE HOPE" StopCaidnow,Inc. is focused on providing tools to better educate Doctor's and the community on Childhood AutoInflammatory Diseases.
EPN: Tell us about the course of treatments
Lisa: Treatments will help alleviate the inflammation process and the pain that comes with it. The need for proper diagnosis is urgent for the prognosis of these diseases. If left untreated damage to the tissues, organs and vision(for some) will not only be irreversible, but devastating. The foundation works amongst the top Doctor's and Pathologist globally, who are researching better ways to treat, educate, and find a cure for CAID. The ones who help fund, are a huge part of making these projects possible. The foundation not only recognizes this support, but is grateful. It is the Doctors, pathologist, researchers ..who are doing the work. The goal for StopCaidnow,Inc. is to help them spread awareness, and help fund their efforts in helping find a cure for these painful and debilitating diseases.StopCAIDnow,Inc. is proud to announce a partnership with the Cleveland Clinic in which we developed a CME Modules and CD that is dedicated to educating others about Childhood Auto Inflammatory Diseases.
EPN: We understand that you have an Amazing announcement to share:
Lisa: StopCAIDnow, Inc is proud to announce the First National Evaluation Clinic for CAID(Childhood AutoInflammatory Diseases) at the Cleveland Clinic. This clinic is a remote place for all children and CIAD adults with SAID(Systemic) and those yet to be Diagnosed. PLEASE YOU can donate online @ giving.ccf.org/stopcaidnow
StopCaidnow,Inc. is the VOICE for the children suffering, and the Doctor's who are dedicated to helping the cause.